Thyroid Cancer: My Story In the fall of 2011, three months after my wedding, I began to experience some strange health issues including an irregular heartbeat and panic attacks. My new doctors tell me that I would have died. At the time I was almost relieved as I was convinced there was something very wrong with me. May 17, 2012. As my husband and I were going overseas for a month, I had it checked out so I could get any prescriptions I … About this booklet. My diagnosis came about from an almost an incidental finding. I now take three sandocal tablets daily. The left side of my face began swelling again in July and became painful again as the remaining parotid tissue is damaged. I had a busy weekend preparing for being away from the children for three and a half weeks before going in for the treatment. The booklet explains what thyroid cancer is, and how it is diagnosed and treated. Shopping. I was just 31 at the time, and I have always exercised regularly, eaten a well balanced diet, and have been very healthy. I am so fortunate that she is one … Mo B., Alberta, Canada. One doctor actually implied that it is my fault that I have had this reaction to it! These statistics are for people diagnosed with thyroid cancer in England between 2013 and 2017. I have had another MRI scan and further sialograms, but no-one is prepared to remove the residual tissue because of the potential damage to my nerve. In 2009, I began experiencing joint pain and swelling. Read stories & experiences from patients. We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. My diagnosis came about from an almost an incidental finding. We are taking the children to Euro Disney in April! Sonia's story. It can be challenging for busy nurses to keep up to date with rapidly changing guidelines and new evidence around best practice and effective clinical management. Thyroid Cancer by Ruth Presswood When I was diagnosed at nineteen years old, I found many useful websites on the scientific explanations of having thyroid cancer, but nothing on what it could possibly feel like after the operation or how I would cope with being a cancer survivor. Hi, I was diagnosed with thyroid cancer when I was in my 30’s. The 2016 MasterChef finalist was diagnosed with thyroid cancer aged 33, after he had ignored a lump in his neck for more than a year. … Explore in-depth stories from thyroid cancer patients and survivors, who share everything from how they got diagnosed, thyroidectomy, and navigating life with cancer. . . September is Thyroid Cancer Awareness month, so I thought I would share my personal experience with diagnostic studies for Thyroid Cancer. The Consultant said she thought it was just a collection of thyroid cells lodged behind my collar bone but she still wanted me to be admitted four days later to undergo the radio-iodine treatment. It hasn’t to this day. Some History. My name is Chris James, I’m forty nine years old and I was diagnosed with thyroid cancer in May 2013. Finally, in 2011, my thyroid levels indicated that I had hypothyroidism. I T describes the size of the tumour and whether it has spread into nearby tissues around the thyroid gland.. N describes whether the cancer has spread to the lymph nodes close to the thyroid gland.. M describes whether the cancer has spread to other parts of the body, such as the lungs or the bones (metastatic or secondary cancer). So amidst the numerous follow-up appointments and recovery I had to undergo interviews to keep a job. Survival for all types and stages of thyroid cancer. After three visits to a Neurologist and nerve conduction studies, which I had to endure two weeks after my parotidectomy, it seemed that I had low calcium levels. My name is Chris James, I’m forty nine years old and I was diagnosed with thyroid cancer in May 2013. I knew I had to get myself into a positive place to beat it. I then had a consultation with the Nuclear Medicine Consultant who told me she thought the cancer had spread to my bone and was in my collar bone. I had had a ‘feeling’ there was something wrong with my neck for over a year and numerous symptoms which I now know indicate thyroid cancer. Read Sonia's thyroid cancer story about getting diagnosed, radiation treatment and life after cancer. In February 1974 I found a lump in my neck which shouldn’t have been there, so went to my GP. for six weeks! At this point I thought it was a goitre but when the results came back showing ... My name is Cy Davies. We are the only registered charity in Wales supporting this rare form of cancer l Tel: 0845 009 2737 l Registered Charity No 1113774. I Survived Thyroid Cancer—but Dealing With the Side Effects Has Been Harder Than I Ever Imagined. If you have had difficult experiences coping with your thyroid condition but have come through it and can offer hope to others then please let us know your story. I had had a ‘feeling’ there was something wrong with my neck for over a year and numerous symptoms which I now know indicate thyroid cancer. However in winter, it could be difficult to keep the motivation going. I woke up in May 2009 with a hugely swollen and painful left parotid gland. The Nuclear Medicine consultant told me it would settle. I’m sure people would say that to have any part of you scanned is horrible in that situation, but I think when it is your head and the scanner is literally spinning an inch from your face for 40 minutes, it is just awful. I’d had laryngitis on and off for a while, but as I’m a receptionist I put it down to talking too much. TANYA’S STORY — Once again, here is an example where getting the “Fibromyalgia” diagnosis may not be what you think. I continued to get checked out, but none of my tests or check-ups showed an issue. Post surgery, my endocrinologist assumed that I would be doing the radiation treatment, a standard procedure for thyroid cancer. The following month, my right parotid gland swelled and three months later my tongue went numb on the right side due to damage to the right submandibular salivary gland. Hi, my name is Sarah, and I'm 37. Through my cancer diagnosis, treatment, battle and follow-up tests, it has been very healing to share my story through posts on this blog. Like most people I knew that I had a thyroid, I never really stopped to think about what it did for me and I certainly had never even heard of thyroid cancer! Women are 2 to 3 times more likely to develop thyroid cancer than men. Chris Lim. Success stories Read about how … Get in touch with our patient support contacts, To order Dvd's, Leaflets, TSH cards please email us. She wanted to perform a bone scan that afternoon so I had the injection and had to sit and wait on my own in the waiting room for three hours for it to take effect. I’d been told that thyroid cancer tends to have good prognoses. My doctor noticed it during my physical. I hadn’t heard of thyroid cancer and I didn’t receive any information in the hospital! And I know that there are so many other stories out there to … My name is Georgina and I was diagnosed with follicular thyroid cancer. At first, she felt hurt by the comments, but then Emily O'Carroll realized she should probably talk to her doctor. The tests showed nothing abnormal. It's most common in people aged 35 to 39 years and in those aged 70 years or over. I went to my GP to get it checked out, but the biopsies and scans were inconclusive. Tap to unmute. Thyroid Cancer: Real Stories About What Really Matters You'll find many people have already walked your path. Then she had thyroid cancer. I had an ultrasound and biopsy two days later and was given the diagnosis of thyroid cancer two weeks later. Two weeks ago I developed another infection in the residual parotid tissue this time on the right side which was swabbed, so I am back to the surgeon again this week for the results. When I was 52, I was diagnosed with Thyroid Cancer. We try to publish all stories that may offer hope and inspiration to us all. In the meantime I had to telephone my Mum to ask her to come back to the hospital to meet me (patients only allowed in Nuclear Medicine) whilst I went through with the scan. Sometimes things just don’t go to plan following a diagnosis with Thyroid Cancer, as Sarah discovered. Within 10 days I was operated on in the Royal Gwent Hospital. Tanya’s pain and misery went away thanks to Natural Desiccated Thyroid in an optimal dose. I couldn’t close my left eye, speak properly or eat or drink easily. I went to a specialist clinic in Manchester where facial nerve palsies are treated by using a Neuro-4 stimulator daily (I had to put eight probes on my face for an hour per day and electric shocks were sent through to stimulate the nerve). I finally got a referral to an ENT consultant about a problem with my ear, and, out of sheer desperation, asked him to check my neck. She suddenly took second place to me and her operation was rearranged. Newlywed, 26, discovers she has thyroid cancer after bumping into eagle-eyed doctor on her HONEYMOON in Cyprus. The second scan indicated a definite spot and half an hour later I had a helical CT scan. Each year, around 2,700 people are diagnosed with thyroid cancer in the UK. I had numerous appointments, sialagrams, an MRI scan where the doctor couldn’t inject my vein with the dye and I ended up covered in bruises and bandages, and finally an abscess developed in my right parotid gland, so I was scheduled for surgery to remove the gland in November 2009. At age 32, Perry was diagnosed with papillary thyroid cancer and had a partial thyroidectomy with partial neck dissection because of metastasis to the lymph nodes. My home treadmill rested, unused. September 14, 2018 / By Gail Barackman, CPC, CPMA, CEMC. Writer Christine Coppa had her thyroid removed because of cancer… Major heart surgery was imminent for my little one year old grandson Harri. In 1998 I visited my doctor as I was experiencing chronic hoarseness, some neck discomfort and slight swelling on the left side of the neck. I have undergone four operations, which is unusual, and have had two lots of radioactive iodine treatment. Perry Monaco. Thyroid Cancer Awareness Month: A personal story. A few weeks later I had a test dose of Radio-iodine and returned to the Royal Liverpool hospital the following day for a scan which was supposed to take about 20 minutes. Here is my story. Info. My eldest son was getting married on May 2nd , my other son was moving house and his wife was expecting their second child in early May. We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. © 2014 Thyroid Cancer Support Group - Wales l Disclaimer l All Rights Reserved. If playback doesn't begin shortly, try restarting your device. England, United Kingdom About Blog Thyroid advocate and blogger. In … Share. This is a place for thyroid patients to share positive thyroid experiences with others. Patient stories. Even though cancer is talked about more than it used to be, people still don’t want to talk about it - but attending the group meetings after my surgery and treatment ... Georgina Miller - Treasurer and Founder Member TCSGW Hello there! Thyroid Cancer 101. I have seen many doctors who just put the damage down to the high dose of radio-iodine. The staging for thyroid cancer patients younger than 55 and those 55 and older are different, so that’s how we’ve separated their stories. April and May 2009 were going to be busy months. I am the Secretary of this Support group and one of the founder members in 2004. ThyCa: Thyroid Cancer Survivors' Association, Inc. is a nonprofit 501(c)(3) organization (tax ID #52-2169434) of thyroid cancer survivors, family members, and health care professionals. The most common staging system is the TNM system. Copy link. So I have to live with almost constant pain in the left side of my face which radiates up to my ear and causes dizzy spells. I was 58 when I was diagnosed in 2001. Metastasized thyroid cancer, then 300 mg Synthroid and misery, followed by a complete turnaround with Natural Desiccated Thyroid. I currently have further appointments planned and am very much hoping that someone will be able to do something to help me. My face had totally frozen on that side. I also developed another abscess which did seem to improve with five weeks of antibiotics. My children were aged three and six, and my youngest child had had a succession of hospital treatment and surgery since birth at Alder Hey Children’s Hospital, so it seemed like another massive hurdle to overcome, especially as she was scheduled to have further surgery the same week my thyroid was due to come out. I was 47, my youngest daughter was 14. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. The stories will give you practical ideas to better manage your situation. To say that it was a shock is putting it mildly. My tumour turned out to be bigger than shown on the MRI and CT scans and was graded T4. Sarah’s Story. His surgery was … Watch later. Emmy Collett, who lives in Wiltshire, was diagnosed with terminal medullary thyroid cancer at St George’s Hospital in March - after suffering with symptoms of the disease for nearly two years. In the March before my diagnosis I had half of my thyroid removed because of a large swelling I had in my neck. I lost my job though. In April 2010 I went back in to hospital to have my left parotid salivary gland removed, but unfortunately it was so badly damaged it had literally set like cement over my facial nerve and I sustained a facial nerve palsy. I thought I was too young. However, the initial scan showed an extra spot on my collar bone and so it was repeated. In 2008 and 2009 I felt fatigued. The annual incidence data for thyroid cancer in the UK from 2008 show 5.1 per 100,000 for women and 1.9 per 100,000 for men. The palsy improved over three months and I have only slight weakness now. In the midst of all this, I realised my fingers, toes and lips were tingling. Thyroid cancer is a rare form of cancer, accounting for less than 1% of all cancer cases in the UK. Some types of medullary thyroid cancer are associated with other endocrine abnormalities and may run in families. Thyroid cancer is relatively rare -- only about 60,000 U.S. cases are diagnosed each year -- and it's one of the most survivable cancers, with … Welcome to Butterfly Thyroid Cancer Trust. ThyCa: Thyroid Cancer Survivors' Association, Inc. is a nonprofit 501(c)(3) organization (tax ID #52-2169434) of thyroid cancer survivors, family members, and health care professionals. I was on holiday for my husband’s 40th birthday when I first noticed a lump in my neck. Twelve hours after taking the capsule, I woke up with hugely swollen salivary glands, fingers, yellow skin and severe nausea. I had found a balance between exercising, eating right, volunteering and being with my kids. The Invisible Hypothyroidism. Or it could have spread to my Esophagus, and esophageal cancer survival rates are scary, only 1 in 16,000 survives. I want to be close to my family and now to increase awareness of thyroid cancer and its potential effects. Anyway the hours passed by and I had the bone scan which turned out to be clear. Up Next. © 2016 Butterfly Thyroid Cancer Trust. 90 out of every 100 men (90%) survive thyroid cancer for at least 1 year after diagnosis Sometimes things just don’t go to plan following a diagnosis with Thyroid Cancer, as Sarah discovered. My tongue is permanently numb on the right side which makes speech difficult at times and is very hard to deal with. He found the lump on my thyroid instantly. Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer. But I knew something was off, so I went to the doctor and had my thyroid checked. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can. Hello, my name is Helen Hobrough. IE 11 is not supported. I was elated . In genetic cases there is a 50% chance of each child of an affected parent inheriting the faulty gene. In late 2000 I went to my GP complaining of aching in my back which would come and go every few weeks. My sneezing, coughing, and wheezing seemed like springtime allergy symptoms—but they turned out to be thyroid cancer. I loved being in the water. I had planned to have the scan and then go in to Liverpool with my Mum to do some Christmas shopping. Providing information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders in the UK. Medullary thyroid cancer (MTC) MTC is rare and arises in the C cells of the thyroid, which produce calcitonin.
When Do Formula 1 2021 Tickets Go On Sale,
Crab Restaurant Brisbane,
3 Bedroom Unit For Rent In Hurstville,
Stateful Vs Stateless Firewall - Cisco,
Best Novo Amor Lyrics,
What Does Morena Mean In Spanish,
Southend High Street Webcam,
école Montessori Recrutement,